RNDRSD_Awareness

Status:
Joined: February 17, 2012
Last Seen: 1 decade
user id: 275002
layout credit
Text Box 1
BA
http://www.youtube.com/watch?v=Zo-xQLigqDo&feature=related

   a idea of what this feels like ^^

http://www.youtube.com/watch?v=JExMHMlIi4E&feature=related
^
^or thi

Im just a regular teen girl. I sprained my wrist. Now, i have been in the hospital fr a month, treatment after treatment to make my physacal pain go away. Its like I am Sitting in a bath of FIRE and doctors think i faking. Its 24/7 pain. 80% of people who get this are girls. Alot of people do not know about it.  people that have it try to hide the pain from there friends in fear they might be acused  of faking. Medication DOES NOT HELP. At all. It my stupid nerves. I want a cure. For everyone that has to face this.
Text Box 2
What is RND?

Reflex Neurovascular Dystrophy (RND) is a very painful medical condition that usually affects a limb, but sometimes (as in Kylie's case) it affects the whole body—even the face and the scalp. The nerves going to the blood vessels become overactive and cause pain. The pain that these children experience is much more intense than what "normal" pain is because the pain signal is amplified

Because there is no structural damage and blood tests are normal, most children are told that they are making up their pain or that it's just a matter of "forgetting about it and it will go away." If untreated it can DISTROY the nerves.  RND is not widely known, so many children go undiagnosed for years, suffering excruciating pain in the meantime. In many cases, they face mockery and abuse from people who don't believe that they can be in so much, real pain.

RND can be caused by musculoskeletal inflammatory diseases such as arthritis. Reflex Neurovascular Dystrophy can not be brought on by stress; it can ONLY be AMPLIFIED by stress once RND is already present in the patient. Stress may continue to play a major role in RND even after the child has RND under control. It can relapse if the child feels depression, a lack of acceptance by society, or is injured.

The best known treatment of RND is extreme physical therapy. There are several such programs, including Children’s Hospital in Seattle, Mary Free Bed Rehabilitation in Grand Rapids, Michigan, The Children's Institute of Pittsburgh in Pittsburgh, Pennsylvania, The Pediatric Rehab Unit at The Children's Hospital at Legacy Emanuel in Portland, Oregon, and theChildren's Hospital of Philadelphia (CHOP). In a typical course of therapy, the child is put through 5 to 7 hours of therapy including intensive physical, occupational and pool and/or yoga therapy. While often painful, such therapy helps to improve blood flow and break the RND cycle. The therapy usually lasts between 2–4 weeks before the child has the RND under control. Small relapses and flare ups may occur, usually only during 5 years of the treatment, which is the average time until the child is pain free, though RND can continue to occur and may never cease.

Quotes by RNDRSD_Awareness








whats rnd?

 it normaly starts with a random person that might have got a simple surgery, or sprained some limb. Somehow, and doctors don't know why, The nerve cells get messed up. Then, they set off pain signals to the brain telling that it hurts VERY bad. And the signals dont stop. Its 24/7 until you get treatment. If you wait, The blood vessels start to close off. oh, and pain pills don't work. And Whats Treatment? Doing the most painful thing yu could think of doing, working at it. Lots of phyisacal therapy. No rest if possible. They want you to walk, run jump, and get used to it. I am not doing this for simpathy, i REALLy want a cure. Cuz most doctors dont even know what it is.


 








whats rnd?

 it normaly starts with a random person that might have got a simple surgery, or sprained some limb. Somehow, and doctors don't know why, The nerve cells get messed up. Then, they set off pain signals to the brain telling that it hurts VERY bad. And the signals dont stop. Its 24/7 until you get treatment. If you wait, The blood vessels start to close off. oh, and pain pills don't work. And Whats Treatment? Doing the most painful thing yu could think of doing, working at it. Lots of phyisacal therapy. No rest if possible. They want you to walk, run jump, and get used to it. I am not doing this for simpathy, i REALLy want a cure. Cuz most doctors dont even know what it is.